Oh, mama! I know your life is not what you thought it would be. I know this is not how you saw yourself as a mother — running to medical appointments instead of soccer practices. But your unimaginable life has made you a mother beyond compare. No one advocates for their child the way you do. You took on the world without time to think or prepare. You stepped in. You rose up. You madam, are amazing. Even if you don’t feel amazing.
Happy Mothers Day!
Happy Mothers Day to the mother who has seen her baby in a plastic box. The mother who had to ask a nurse when she could hold or touch her baby for the first time. The mother who knows what a baby needs to do to move out of an incubator and into an open crib.
Happy Mothers Day to the mother who has seen her child intubated and knows the sounds a ventilator makes. Do-do-do-doo-doot. The mother who knows the difference between a ventilator, CPAP, high flow, nasal cannulas, and room air.
Happy Mothers Day to the mother who has spent countless nights (and maybe a few holidays) in her child’s hospital room. The mother whose child has been in an ICU (NICU or PICU). The mother who has spent so many nights in a hospital room with her child that she has a preferred style of parent sleep couch.
Happy Mothers Day to the mother who has spent hours in an emergency department with her child. Injuries. Seizures. Illnesses. Episodes of respiratory distress. Gateways to admission. Really too many reasons to list.
Happy Mothers Day to the mother whose child has a lifelong chronic condition. The mother who knows another admission may just be a matter of time. The mother who always waits for the other shoe to drop.
Happy Mothers Day to the mother who has sent her child into surgery. The mother whose been in a surgery waiting room more times than she cares to count.
Happy Mothers Day to the mother who takes her child to countless therapy appointments. The mother who has been told what her child will never do. The mother who hopes her child will defy the odds. The mother who helps her child find as much independence as possible.
Happy Mothers Day to the mother who prepares for IEP meetings like she is going into battle. The mother who fights to give her child every chance.
Happy Mothers Day to the mother who knows more about her child than she ever thought she would need to know. The mother who knows how her child reacts to medications. The mother who knows her child’s recovery patterns. The mother who knows what type of cough precedes vomiting.
Happy Mothers Day to the mother who has ever felt like a home care nurse. The mother who gives multiple daily medicines. The mother who feeds her child through a tube. The mother who has oxygen tanks and/or oxygen concentrator in her home. The mother who watches her child’s monitor for apneas and bradys. The mother who can hook up IV fluids, IV antibiotics, and/or IV nutrition in her home.
Happy Mothers Day to the mother who didn’t think she could all do this. To the mother who thought she wasn’t capable of managing her child’s health. To the mother who was and is scared. To the mother who feels overwhelmed, but continues to push forward. To the mother who gives everything she has to her child(ren) so they can have a more typical childhood. To the mother who still blames herself. To the mother who wonders why. To the mother who feels like she isn’t doing enough. To the mother who feels lost to her child’s medical diagnoses.
Happy Mothers Day, warriors! I hope you feel seen, appreciated, and loved. I hope you are celebrated. I hope you take a moment to realize how amazing you are.